description"stroke Support Group provides support for stroke sufferers, their families and carers, through our forum and chatroom join for encouragement worldwide support> ://www.facebook.com/2008/fbml"> "> "> <meta name=" support="" forums="">


p                                                                                                                                                                                                                                                                                                                                                           
           welcome to stroke support group all types of strokes  if this is you first visit to this website be sure to visit our support forum
                                                                                                                                                                                                                                                     
main menu
          welcome
;
 
'
;
[

 

            '                 We comply
 with the HONcode
      standard for
  trustworthy health
  information verify here







    













           fast video
              here
It was the end of August when it all happened, a Friday to be precise, two of my brothers asked if I fancied a boat trip going fishing, I jumped at the chance, and started arranging things. A little while later my wife looked at me, she noticed I was different, sort of out of character I looked a little odd, “let me take you to hospital” she said, you do not look right” Of course being a typical man I dismissed this, shortly after I was lying on the settee. My arm seemed to have weakened, I could not lift it much, it felt too heavy, by that time my wife had telephoned for an ambulance. When it arrived I was still coherent, I personally cannot recall anything about this, but my wife informs me that I could still hold a conversation.
I was obviously very ill but I had settled down, it appeared as if the worst was over. That weekend one of my brothers had booked a holiday abroad, he was to be flying out on the Monday, of course he was apprehensive about going, and was to cancel the flight, but after a conversation with my family it was decided they should go as I was still conscious and obviously I was going to survive.  read more
[

 Since my stroke in Dec 06, the need to improve and sustain
a reasonably adjusted life has been foremost in my life.
The need NOT to be totalldependent on the wheelchair,
 the need to make my hand semi functional, and the desperation
to try and gain some
 independence. I decided to go ahead and seek more help by asking
Dr Tom Balchin of ARNI to recommend an Instructor.
                                                            '



Can you Imagine what it feels like to be buried alive? Lets bring hope
 and raise awareness for people and their families coping with the effects
 of locked-in following a severe stroke.

"Hello I thought you might be interested my story? On Feb 7th 2010 I
unfortunately suffered a major stroke.

My survival chances were 50/50 and it was utterly devastating. Not
 any normal stroke for a fit 40 year old mum of three young children,
 but an awful blood clot to my brain stem which caused me to become
paralysed with locked-in syndrome. I used to road run, such as the
 Sheffield half marathon 1:35 (tagged) 42 min 10kms eg the percy pud
in Sheffield then I moved
onto fell running with Jaqui and Anita around 12 miles at a time.
Imagine being buried alive, only able to blink.....? read more
 

                                                        '
I'm Dottie. Here is my story.

I'm a 64 year old woman who lives in northeast Connecticut in the United States of America. about an hour's drive from the Atlantic Ocean. I was in good physical condition, a nonsmoker, nondrinker, who ate lots of fruits and vegetables with no known health issues. I was outside at 8 a.m. on Monday November 15, 2010 when I felt my stroke starting.

I managed to get inside my kitchen then collapsed on the floor. I was unable to call for help. I live alone.
Wednesday after 7 p.m. I was found still on my kitchen floor. My 100 pound dog was laying next to me, keeping me warm and doing her best to guard me.
I was taken by ambulance to the nearest hospital, 30 miles away, then transferred to a trauma critical care unit in another hospital another 25 miles farther. I was totally paralyzed on my left side with my arm and leg swollen to twice their normal size. I didn't get care admitted untiThursday morning.
.'






The locked-in syndrome is caused by an insult to the ventral pons, most commonly an infarct, haemorrhage, or trauma. The characteristics of the syndrome are quadriplegia and anarthria with preservation of consciousness. Patients retain vertical eye movement, facilitating non-verbal communication. Ten year survival rates as high as 80% have been reported. Even limited physical recovery can improve quality of life and enable patients to return to live with their families. Early referral to a specialist rehabilitation service for specialist care andtechnology is therefore important.                                                                                '
Locked-in syndrome is a rare neurological disorder in which there is complete paralysis of all voluntary muscles except for the ones that control the movements of the eyes. Individuals with locked-in syndrome are conscious and awake, but have no ability to produce movements (outside of eye movement) or to speak (aphonia). Cognitive function is usually unaffected. Communication is possible through eye movements or blinking. Locked-in syndrome is caused by damaged to the pons, a part of the brainstem that contains nerve fibers that relay information to other areas of the brain.                                                 #

For a long time we thought that individuals who were in a state of diminished consciousness were unable to respond. Through years of working with people with severe brain injuries and diminished responding capacities we have learned that the person may be receiving information but be unable to produce an effective response. Some people may communicate with an eye blink, a facial gesture or even by moving a toe'






                                                                                                      
A warm welcome to Stroke Support Group and thank you for taking the time and trouble in joining this website.  Stroke Support Group is the concept of several Stroke Survivors who felt the importance of imparting their experiences – some good, some bad – and to share their feelings, emotions and to aid and support one another through the exchange of information.  We value the participation of Stroke Survivors and Carers and we hope you grow with us in maintaining an informative website for all past, present and future users,
 
the signs of a stroke   are now well l publicized thanks to TV advertising. However, few people actually know what the effects of a stroke are, the immediate care and treatment required and the long-term care that may be needed in the future. A stroke is a major event in anyone’s life and can have long lasting effects on families, friends, employment and social activities. Most families are completely unprepared when someone has a stroke. Our group  recognized this and is able to offer support right from the start, or when needed. However to become a member, of our forum it simple  and  free so start your

support here#



think my story began in 1982 with hypertension in pregnancy,4 children later and severe problems with the pregnancies I commenced medication in 1988.I lived a normal life with husband and 3 young children[our eldest died] and worked on a bank need as a staff nurse,we were happy,content and fairly healthy,we had problems with our son who had menigititis following measeles and this left him with kidney problems and he had freguent admissions to Alder Hey Hospital,Liverpool.In 1999 myhusband had a lump which read more'
     


 it was march 9th 2008 a nice Sunday afternoon and I was out with my boyfriend to relax because I was little bit stressed
about the language exams which I had to pass…
He brought me to the bus station and it was 17:50 I just know that coz my mother wrote me an sms at that time and I didnt
feel it  anymore 
I was sitting there and we were waiting for the bus and talking when I suddenly lost consciousness for a short time. I didn’t
 realize what happened.. I just know that I saw the floor coming closer when I fell down. At that moment I thought that I've
 made a wrong step or something like that but my boyfriend was yelling at me..
I don’t know anymore what he said to me.. I just know that all the people were standing around me and staring at me. I “told”
 them that I am fine and just made a wrong step like I thought… I was “speaking” with the 
 people around me not to make such a
 stress and to let me sit up… but the didn’t listen to me.. then I tried to 
 sit up but I was not able to. That was the point where I realized that something was  was wrong 
                  '
                                                                                                                                                             
Visitors please read. The information given on our forum is for general stroke information only. It is not intended
to be, nor should it be treated as an alternative to medical
advice given by a doctor. Anyone who thinks they have suffered a stroke or anyone else has suffered from a stroke should
 seek medical advice without delay.                                                                                                                                                                                                              
'

While everyone’s experience is different, meeting other stroke survivors or caregivers who understand what you are going through can help you throughout your recovery. With over  110,000 people stroke survivors, and 150,000 new strokes occurring in the U.k. each year, you are not alone. In addition to providing social opportunities, support groups promote wellness by helping members with making difficult decisions, problem solving and locating local resources, as well as providing:

  •  stroke chatroom

  • stroke    support
  • stroke advice
  • Recreational activities
  • Rehabilitation support
  • Self help

Groups may meet yearly,  or  and at different times of the day. There are a wide variety of support groups for stroke survivors and caregivers; find one that fits you!,

        
        
                                                                                                                                        Summary points
                                                       Life expectancy has improved for patients with locked-in syndrome                                  
                                                      Early specialist rehabilitation aids patients to regain some function
                                                        Establishing an effective communication system should be an early target
                                                              Engaging the family in rehabilitation may enable eventual return home
                                                         Despite profound disability, patients don't necessarily want to die.
                                                                                                

                                       testimonial


                 This is a helpful website! I am recovering from a stroke that I had on May 2 nd 2011. Things are improving a little at a time...except for my patience! It's nice to be able to read about other people's experiences and see that I'm not unique!    #
                           
                                                                          







 
                                                      copyright of stroke  support group  ©  2010  all contents